State of Grief Survey
Thank you for taking part in this important survey to gauge the state of grief in the Omaha area and surrounding areas in Nebraska.
Findings of this survey will be included in the annual State of Grief Report created by the Collective for Hope in Omaha, Nebraska. The Collective for Hope (CFH) is a grief center that provides groups, counseling, activities, and community for those experiencing grief.
We expect this survey to take 5 to 10 minutes to complete. Responses will be analyzed collectively by Collective for Hope and individuals will remain anonymous. The CFH team will then provide an annual report to the public using your invaluable feedback.
This survey will ask you questions about death and grief, which may be activating or cause intense feelings. If you are looking for a space to honor your loss, click below to access our free services.
By clicking the button to begin the survey below, you are giving your consent to participate in this survey. If you do not wish to participate for any reason, please click the exit survey link below.
Visit Collective for Hope:
www.collectiveforhope.org
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Demographics
By disclosing the following demographics, you are helping us apply for grants/funding that keep our programs free and/or accessible to everyone regardless of their ability to pay. Your personal information is kept confidential and is not reported alongside the details shared in this section. Thank you for whatever information you are comfortable sharing for this purpose.
How old are you?
Are you...
Male
Female
Nonbinary
Transgender
Prefer not to disclose
Other
What is the highest level of school you have completed or the highest degree you have received?
Less than a high school degree
High school graduate (high school diploma or equivalent, including GED)
Some college but no degree
Associate degree in college (2-year)
Bachelor's degree in college (4-year)
Master's degree
Doctoral degree
Professional degree (JD, MD)
What is your ethnicity?
Asian
Biracial or multiracial
Black or African American
Hispanic or Latinx
Native American or Alaska Native
Native Hawaiian or Pacific Islander
White
Not listed
Prefer not to disclose
In what county do you live?
Cass
Dodge
Douglas
Sarpy
Washington
Another county in Nebraska that is not listed
I don't live in Nebraska
In what county in Nebraska do you live?
Please Select
Adams
Antelope
Arthur
Banner
Blaine
Boone
Box Butte
Boyd
Brown
Buffalo
Burt
Butler
Cedar
Chase
Cherry
Cheyenne
Clay
Colfax
Cuming
Custer
Dakota
Dawes
Dawson
Deuel
Dixon
Dundy
Fillmore
Franklin
Frontier
Furnas
Gage
Garden
Garfield
Gosper
Grant
Greeley
Hall
Hamilton
Harlan
Hayes
Hitchcock
Holt
Hooker
Howard
Jefferson
Johnson
Kearney
Keith
Keya Paha
Kimball
Knox
Lancaster
Lincoln
Logan
Loup
Madison
McPherson
Merrick
Morrill
Nance
Nemaha
Nuckolls
Otoe
Pawnee
Perkins
Phelps
Pierce
Platte
Polk
Red Willow
Richardson
Rock
Saline
Saunders
Scotts Bluff
Seward
Sheridan
Sherman
Sioux
Stanton
Thayer
Thomas
Thurston
Valley
Wayne
Webster
Wheeler
York
In what state do you live?
Please Select
Alabama
Alaska
Arizona
Arkansas
California
Colorado
Connecticut
Delaware
Florida
Georgia
Hawaii
Idaho
Illinois
Indiana
Iowa
Kansas
Kentucky
Louisiana
Maine
Maryland
Massachusetts
Michigan
Minnesota
Mississippi
Missouri
Montana
Nevada
New Hampshire
New Jersey
New Mexico
New York
North Carolina
North Dakota
Ohio
Oklahoma
Oregon
Pennsylvania
Rhode Island
South Carolina
South Dakota
Tennessee
Texas
Utah
Vermont
Virginia
Washington
West Virginia
Wisconsin
Wyoming
In what county in Iowa do you live?
Please Select
Adair
Adams
Allamakee
Appanoose
Audubon
Benton
Black Hawk
Boone
Bremer
Buchanan
Buena Vista
Butler
Calhoun
Carroll
Cass
Cedar
Cerro Gordo
Cherokee
Chickasaw
Clarke
Clay
Clayton
Clinton
Crawford
Dallas
Davis
Decatur
Delaware
Des Moines
Dickinson
Dubuque
Emmet
Fayette
Floyd
Franklin
Fremont
Greene
Grundy
Guthrie
Hamilton
Hancock
Hardin
Harrison
Henry
Howard
Humboldt
Ida
Iowa
Jackson
Jasper
Jefferson
Johnson
Jones
Keokuk
Kossuth
Lee
Linn
Louisa
Lucas
Lyon
Madison
Mahaska
Marion
Marshall
Mills
Mitchell
Monona
Monroe
Montgomery
Muscatine
O’Brien
Osceola
Page
Palo Alto
Plymouth
Pocahontas
Polk
Pottawattamie
Poweshiek
Ringgold
Sac
Scott
Shelby
Sioux
Story
Tama
Taylor
Union
Van Buren
Wapello
Warren
Washington
Wayne
Webster
Winnebago
Winneshiek
Woodbury
Worth
Wright
Please select all that apply to you. You will be asked to answer questions about each of the experiences you select. If you are uncomfortable sharing about any one of these, do not select that choice.
*
Someone close to me has died (e.g., a partner, parent, child, close friend, beloved pet)
I have supported a griever (I have been there for someone who experienced a death loss)
I feel like I have lost people who are still alive (break up, severed relationship, missing person, addiction, divorce, dementia, coma, PTSD, etc.)
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Death Information
People often experience multiple bereavements during their lifetime. Please indicate if you have lost any of the following:
Child
Partner or Spouse
Parent
Sibling
Grandparent
Uncle or Aunt
Cousin
Niece or Nephew
Close friend
Colleague/Co-worker
Client/Patient
Acquaintance
Beloved pet
Other
Which loss had the most profound impact on your life?
Child
Partner or Spouse
Parent
Sibling
Grandparent
Uncle or Aunt
Cousin
Niece or Nephew
Close friend
Colleague/Co-worker
Client/Patient
Acquaintance
Beloved pet
Other
Please consider your experience with the death of a person you selected in the previous question, the death that affected you most. Respond to these questions about that particular death.
How long ago did your loved one die?
Within the last 6 months
6-11 months ago
1-2 years ago
3-4 years ago
5-9 years ago
More than 10 years ago
How old was your person when they died?
How did your person die?
Illness/Medical
Suicide
Accident
Substance Use
Homicide
Unknown
Other
Were you the main caregiver for your person?
Yes
No
Were you present when your person died?
Yes
No
Would you have liked to be there?
Yes
No
Unsure
Anticipatory grief is when you have feelings of grief before the person has died. You may feel worried about the future and how you will cope without them, or sad or angry about their illness and its effect on your life. Did you experience anticipatory grief?
Yes
No
Did the death change your living situation?
Yes
No
Did you have any dependents at the time of the death? A dependent is a person who relies on you for support, often financial or material (e.g., children).
Yes
No
Did your dependent(s) have a relationship with the person who died?
Yes
No
How did caring for others impact your personal grief experience?
Oftentimes, caring for others demands your time and energy and makes it more difficult to care for yourself while experiencing grief. You might have had to help them with their own grief experience, if they had a relationship with the person who died.
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Grief Information
The following questions are about your experience with grief. Please continue to answer these questions about the death that you identified impacted you most. This survey defines grief and bereavement as the intense emotional, physical, and psychological response to a significant death loss.
What was the single most important source of support for you in coping with your bereavement?
Social network of family and friends
Medical treatment
Pets
Priests or spiritual advisors
Books or film
Therapeutic services (counseling, therapy)
Peer-led group or social programming
Other
Have you sought grief-specific services to help you cope with your grief (e.g., grief counseling, grief groups, grief camp)? Remember to only consider the death you identified as most impactful.
Yes
No
Why did you not receive grief services?
Felt it was too painful
Felt it was too soon after the death
Felt it was too long after the death
The time of programming was inconvenient
Did not have information about services available to me
Other
In the past week, how often have you yearned for the deceased?
Not at all
Somewhat
A lot
In the past week, how often have you felt guilty or angry about your loss?
Not at all
Somewhat
A lot
In the past week, how often have you felt sad or emotionally numb?
Not at all
Somewhat
A lot
Have these grief experiences caused problems in personal, family, social, educational, occupational, or other important areas of your life?
Not at all
Somewhat
A lot
How much are you having trouble acknowledging the death of your person?
Not at all
Somewhat
A lot
How much are you having images or thoughts of your person when they died, or other thoughts about the death that really bother you?
Not at all
Somewhat
A lot
Are there things you used to do when your person was alive that you don't feel comfortable doing anymore, or that you avoid? Like going somewhere you went with them, or doing things you used to enjoy together? Or avoiding looking at pictures or talking about them? How much are you avoiding these things?
Not at all
Somewhat
A lot
How much are you feeling cut off or distant from other people since your person died, even people you used to be close to like family or friends?
Not at all
Somewhat
A lot
If you feel comfortable, please describe your experience of grief after your loss, including anything that supported or helped you.
What additional grief services or supports would you like to see available in Omaha?
*Optional* What was your loved one's name? If you provide their name, you give us permission to honor their name in a public display.
First names or nicknames are just fine.
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Secondary Death
In this survey, we use the term Secondary Death to refer to secondary stress that may arise when you care for someone who is experiencing grief. Even though you did not “directly” lose someone, watching someone you care go through grief about can affect your emotions as well.
Please indicate your relationship to the person who experienced a grief loss, with which in the aftermath you helped care for them.
Child
Partner or Spouse
Parent
Sibling
Grandparent
Uncle or Aunt
Cousin
Niece or Nephew
Close friend
Colleague/Co-worker
Client/Patient
Acquaintance
Beloved pet
Other
When caring for the person who experienced a death loss, did you ever experience any of the following?
I felt emotionally numb.
Not at all
Somewhat
A lot
My heart started pounding when I thought about my relationship with this person.
Not at all
Somewhat
A lot
It seemed as if I was reliving the loss(es) experienced by this person.
Not at all
Somewhat
A lot
I had trouble sleeping.
Not at all
Somewhat
A lot
I felt discouraged about the future.
Not at all
Somewhat
A lot
Reminders of my relationship with this person upsets me.
Not at all
Somewhat
A lot
I had little interest in being around others.
Not at all
Somewhat
A lot
I felt jumpy.
Not at all
Somewhat
A lot
I was less active than usual.
Not at all
Somewhat
A lot
I thought about my relationship with this person when I didn't intend to.
Not at all
Somewhat
A lot
I had trouble concentrating.
Not at all
Somewhat
A lot
I avoided people, places, or things that reminded me of my relationship with this person.
Not at all
Somewhat
A lot
I had disturbing dreams about my relationship with this person.
Not at all
Somewhat
A lot
I was easily annoyed.
Not at all
Somewhat
A lot
I expected something bad to happen.
Not at all
Somewhat
A lot
I noticed gaps in my memory about time with this person.
Not at all
Somewhat
A lot
If you feel comfortable, please describe your experience caring for someone who experienced a grief loss.
*Optional* What was your loved one's name? If you provide their name, you give us permission to honor their name in a public display.
First names or nicknames are just fine.
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Ambiguous Loss
Ambiguous loss is when someone is physically out of your life but still psychologically present to you (a severed relationship, divorce, incarceration, military deployment, missing persons, etc). It can be a physical presence with psychological absence (Alzheimer’s disease, dementia, traumatic brain injury, etc.) It might also be a homesickness for a home country community to a migrant or a loss of someone you never met, but meant something to your family.
Please indicate the type of ambiguous loss that you have experienced.
Physical absence with psychological presence (e.g., missing person, divorce, adoption, migration, immigration, severed relationship, military deployment)
Physical presence with psychological absence (e.g., Alzheimer’s disease, dementia, traumatic brain injury, mental illness, coma, stroke)
Which loss had the most profound impact on your life? Please think of one person you lost.
Physical absence with psychological presence (e.g., missing person, divorce, adoption, migration, immigration, severed relationship, military deployment)
Physical presence with psychological absence (e.g., Alzheimer’s disease, dementia, traumatic brain injury, mental illness, coma, stroke)
Please indicate your relationship to the person you lost physically or psychologically.
Child
Partner or Spouse
Parent
Sibling
Grandparent
Uncle or Aunt
Cousin
Niece or Nephew
Close friend
Colleague/Co-worker
Client/Patient
Acquaintance
Beloved pet
Other
Below, several separation distress reactions are listed. Please indicate how often you have experienced each of these reactions due to the loss of the person identified above in the past month. Note: Some questions refer to the “disappearance” of your person. This is referring to the physical or psychological loss you identified in the previous question.
Intrusive thoughts or images related to the person who disappeared.
Not at all
Somewhat
A lot
Intense emotional pain, sadness, or pangs of grief.
Not at all
Somewhat
A lot
Longing or yearning for the person who disappeared.
Not at all
Somewhat
A lot
Avoidance of places, objects, or thoughts that reminded you that the person disappeared.
Not at all
Somewhat
A lot
Bitterness or anger related to their disappearance.
Not at all
Somewhat
A lot
Moving on (e.g., making new friends, pursuing new interests) was difficult for you.
Not at all
Somewhat
A lot
Feeling emotionally numb.
Not at all
Somewhat
A lot
Life is unfulfilling or meaningless without them.
Not at all
Somewhat
A lot
A significant reduction in social, occupational, or domestic functioning because of their disappearance.
Not at all
Somewhat
A lot
Negative thoughts about yourself in relation to the disappearance (e.g., thoughts about self-blame).
Not at all
Somewhat
A lot
Feeling alone or detached from other individuals.
Not at all
Somewhat
A lot
Feeling it is unreal that they disappeared (physically or psychologically).
Not at all
Somewhat
A lot
Intense blame on others because of their physical or psychological loss.
Not at all
Somewhat
A lot
A part of you is gone along with the person you lost.
Not at all
Somewhat
A lot
Difficulties experiencing positive feelings.
Not at all
Somewhat
A lot
Your grief is worse (e.g., more intense, severe and/or longer duration) than for others from your community or culture.
Not at all
Somewhat
A lot
Preoccupation with thoughts or images related to the person or disappearance.
Not at all
Somewhat
A lot
*Optional* What was your loved one's name? If you provide their name, you give us permission to honor their name in a public display.
First names or nicknames are just fine.
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