Undiagnosed chILD Working Group
  • Undiagnosed chILD Working Group

    The chILD Foundation is launching a working group to build the foundation for a pilot support program for families living without a diagnosis. This group will bring together families, clinicians, and researchers to define what that program looks like and how to make it real. Time commitment and schedule details are being finalized — complete this form and we will reach out.The chILD Foundation is launching a new working group to develop a real transition support program for young people with chILD moving from pediatric to adult care. This group will bring together patients, families, and professionals to define the program and shape the research questions that will guide it. Details on time commitment and meeting schedule are being finalized — complete this form, and we will be in touch.
  • Section 1: Contact Information

  • Section 2: Your Role

    Select the option that best describes you:
  • I am a:*
  • Section 3: Your Experience

  • How long have you (or your child) been seeking a diagnosis?
  • Which of the following areas are you most interested in working on?
  • Section 4: Additional Information

  • Should be Empty: