What's Your 57?
Cystinosis warriors, caregivers, friends, family, and healthcare team members are invited to be a part of the Cystinosis Awareness Day movement. Please add your information below.
What’s Your 57? What motivates you on a personal level or inspires you to support the cystinosis community?
*
Name
*
First Name
Last Name
Connection to cystinosis
*
Living with cystinosis
Parent to a cystinosis warrior
Spouse/Partner
Grandparent
Aunt/Uncle
Child of someone living with cystinosis
Clinician/nurse/healthcare team member
Other
If you selected "other" above, please note your cystinosis connection here
Country
*
State/Province
*
Email
*
example@example.com
Upload 1–3 photos that bring your “What’s Your 57?” response to life - featuring you, your loved one(s) with cystinosis, or meaningful moments that reflect what motivates or connects you. (Pictures strongly encouraged but not required)
Upload a File
Drag and drop files here
Choose a file
Cancel
of
By submitting this form, I grant the Cystinosis Research Network (CRN) permission to use the information and images provided for educational, awareness, and promotional purposes. If submitting for a minor, I confirm I am the parent or legal guardian and authorized to consent. Submissions may be edited for clarity or length and may not be used if deemed inappropriate. My email will not be shared outside the CRN.
*
I agree to the terms above
Submit
Should be Empty: