PSF Conference Registration Form: August 13 & 14, 2026 at National Institutes of Health in Bethesda, MD.

PSF Conference Registration Form: August 13 & 14, 2026 at National Institutes of Health in Bethesda, MD.
The PSF Family Conference will be held on the National Institutes of Health (NIH) campus in Building 35.

Camp-style activities for children ages 5 and older will take place at The Children’s Inn at NIH, while childcare for younger children will be provided in Building 35 during conference hours.

A Meet & Greet Pizza Party will be held on August 12 at The Children’s Inn.
The conference will take place August 13–14 and will conclude with a group dinner at Tony’s Italian and Seafood Restaurant on August 14. Transportation to the restaurant will be arranged.

For attendees not staying at The Children’s Inn, discounted room rates will be available at The Bethesdan Hotel, Tapestry Collection by Hilton, which offers shuttle service to NIH. (See registration link below.)

Meals provided:
• August 13: Breakfast and lunch
• August 14: Lunch and dinner

The conference will also be streamed live for those unable to attend in person.
A detailed speaker schedule is currently being finalized.
La Conferencia Familiar de PSF se llevará a cabo en el campus de los Institutos Nacionales de Salud (NIH) en el Edificio 35.

Las actividades tipo campamento para niños de 5 años en adelante se realizarán en The Children’s Inn at NIH, mientras que el cuidado infantil para los niños más pequeños se ofrecerá en el Edificio 35 durante el horario de la conferencia.

Una Fiesta de Bienvenida con Pizza se llevará a cabo el 12 de agosto en The Children’s Inn.

La conferencia se realizará del 13 al 14 de agosto y concluirá con una cena grupal en Tony’s Italian and Seafood Restaurant el 14 de agosto. Se organizará transporte al restaurante.

Para los asistentes que no se hospeden en The Children’s Inn, habrá tarifas especiales con descuento en The Bethesdan Hotel, Tapestry Collection by Hilton, que ofrece servicio de transporte a NIH. (Consulte el enlace de registro a continuación).

Comidas incluidas:
• 13 de agosto: Desayuno y almuerzo
• 14 de agosto: Almuerzo y cena

La conferencia también será transmitida en vivo para quienes no puedan asistir en persona.
Actualmente se está finalizando un programa detallado de conferencistas.
Attendees:
Full Name

First NameLast Name
Guest Full Name

First NameLast Name
Address for person registering:

Street Address

Street Address Line 2

CityState / Province

Postal / Zip CodeCountry
Email Address
example@example.com
Phone Number
Please enter a valid phone number.Format: (000) 000-0000.
WhatsApp Number
Child #1

First NameLast Name
Child's Age
Child #1
Child #2

First NameLast Name
Child's Age
Child #2
Child #3

First NameLast Name
Child's Age
Child #3:
If you will have other children or guests please list names, ages and where they will be during conference below. (Si va a tener otros niños o invitados, por favor indique a continuación sus nombres, edades y dónde estarán durante la conferencia.)
What days will you be attending the conference? ¿Qué días asistirá a la conferencia?
PSF Group Dinner Friday Night at Tony's Italian and Seafood Restaurant. Transportation will be provided.

Cena de grupo de PSF el viernes por la noche en el restaurante italiano y de mariscos Tony's. Se proporcionará transporte.
Will your family be attending the group dinner: (¿Asistirá su familia a la cena grupal?)
Do you have any food allergies or food preferences such as vegan, etc... Please list below: (¿Tiene alguna alergia o preferencia alimentaria, como por ejemplo ser vegano, etc.? Por favor, enumérelas a continuación:)
CONFERENCE FEES:

Adult Registration: $125 per person
Children ages 5–18: $40 each

Families will only be charged for the first two children.

We are also accepting donations to help other families attend the conference. If you would like to contribute, your support is greatly appreciated.

If you prefer to pay by check please send to: Proteus Syndrome Foundation: 9296 Penobscot Ct., Colorado Springs, CO. 80924

GRANTS: We also have a limited number of grants available to assist families with VISA expenses. However, we are not able to cover FULL travel costs for families this year. If your family is unable to afford the conference registration fee, this cost can be waived. Fill in the form and you will be contacted for a grant allowance.

For those unable to attend in person, the conference will be live streamed so you can still participate and stay connected.

CUOTAS DE LA CONFERENCIA:

Inscripción para adultos: $125 por persona
Niños de 5 a 18 años: $40 cada uno

Las familias solo pagarán por los dos primeros hijos.

También aceptamos donaciones para ayudar a otras familias a asistir a la conferencia. Si desea contribuir, su apoyo es muy apreciado.

Si prefiere pagar con cheque, envíelo a: Proteus Syndrome Foundation: 9296 Penobscot Ct., Colorado Springs, CO 80924

BECAS: Contamos con un número limitado de becas disponibles para ayudar a las familias con los gastos de visa. Sin embargo, este año no podemos cubrir la totalidad de los gastos de viaje. Si su familia no puede pagar la cuota de inscripción, podemos eximirle del pago. Complete el formulario y nos pondremos en contacto con usted para informarle sobre la beca.

Para quienes no puedan asistir en persona, la conferencia se transmitirá en vivo para que puedan participar y mantenerse conectados.
If you would like to apply for a grant (other than conference fees) explain here and we will contact you: (Si desea solicitar una beca (que no sea para cubrir los gastos de la conferencia), explíquelo aquí y nos pondremos en contacto con usted:)
Click here to pay / Haz clic aquí para pagar
HOTEL RESERVATION LINK:

If you are NOT staying at the Children's Inn, we have a room block at the Bethesdan Hotel. The hotel has a shuttle to the NIH enterance and the rate is $159+ per night, per room.

INFORMACIÓN DEL HOTEL: Si no se hospeda en el Children's Inn, tenemos un bloque de habitaciones reservadas en el Hotel Bethesdan. El hotel ofrece servicio de transporte a la entrada de los NIH y la tarifa es de $159+ por noche y por habitación.

Click here to reserve your hotel rooms.
Should be Empty:

PSF Conference Registration Form: August 13 & 14, 2026 at National Institutes of Health in Bethesda, MD.

Attendees:

PSF Group Dinner Friday Night at Tony's Italian and Seafood Restaurant. Transportation will be provided.

Click here to pay / Haz clic aquí para pagar

HOTEL RESERVATION LINK:

Click here to reserve your hotel rooms.