UP community survey: your experience of PIP
Before completing this survey, please read our briefing page at https://upmovement.org.uk/have-your-say-the-pip-review which explains what the Timms Review is, why UP is responding, and what will happen with your answers.The survey should take around 15–20 minutes. There are no right or wrong answers. Your responses will be treated confidentially unless you choose otherwise – we’ll ask about that at the end.
You and PIP
Do you currently receive PIP, or have you applied in the past?
*
Yes – I currently receive PIP
Yes – I received PIP in the past but no longer do
I applied but was refused, or had my award reduced or removed
I have never applied for PIP
I’m not sure whether I’m eligible / I haven’t looked into it
If you have never applied, or are unsure whether you’re eligible, please tell us why.
If you receive or have received PIP, which components were you awarded? (Please select all that apply.)
Daily living component – standard rate
Daily living component – enhanced rate
Mobility component – standard rate
Mobility component – enhanced rate
I’m not sure
Prefer not to say
What PIP makes possible
What does receiving PIP allow you to do? (Please select all that apply.)
Pay for essential daily living costs (e.g. food, bills)
Pay for disability-related costs (e.g. equipment, adaptations, care)
Pay for transport or mobility support
Take part in social or community activities
Support my ability to work, study or volunteer
Support my mental health and wellbeing
Something else (please specify)
Is there anything you’d like to add about what PIP makes possible for you?
In your own words, what difference does PIP make to your life? What would change if you lost it?
The assessment experience
How would you describe your overall experience of the PIP assessment process?
*
Very positive
Somewhat positive
Mixed / neither positive nor negative
Somewhat negative
Very negative
I haven’t been through a PIP assessment
Is there anything specific you’d like to tell us about your experience – good or bad?
Do you feel the amount you receive through PIP adequately reflects the extra costs of living with cerebral palsy?
Yes, completely
Yes, to some extent
Not really
Not at all
I’m not sure
I don’t receive PIP
Are there specific costs of living with CP that PIP does not adequately cover?
Cerebral palsy is a lifelong condition. How do you feel about having to reapply for or be reassessed for PIP?
Have you ever had your PIP award reduced, removed, or refused? If so, what happened – and what was the impact on you?
Have you ever challenged a PIP decision – through mandatory reconsideration or appeal?
Yes – I requested a mandatory reconsideration
Yes – I appealed to a tribunal
Yes – I did both
No – I did not challenge the decision
Not applicable / I have not had a decision to challenge
If you challenged a decision, or considered it but decided against it, please tell us more. Was the process fair and accessible?
Looking ahead
Q10. The government has announced that PIP will become the single gateway to a range of health-related and disability benefits. What is your view on this?
Q11. Do you ever feel judged or uncomfortable because you receive, or have applied for, PIP?
Yes, often
Yes, sometimes
Rarely
Never
Not applicable / I have not applied for PIP
If you’d like to say more – for example, whether this has affected your decision to apply, or how you talk about PIP with people around you – please do so here.
Q12. Do you feel that PIP adequately supports your ability to work, or to seek work?
Yes, completely
Yes, to some extent
Not really
Not at all
Not applicable / I am not currently working or seeking work
I don’t receive PIP
Are there ways PIP could better support people with CP to access or remain in work – for example, by reflecting the costs of home working adaptations?
Q13. If you could change one thing about PIP, what would it be?
The focus group
We’re holding an online focus group on Wednesday, 13 May 2026 with four small breakout discussions. Places are limited to 20 participants. Which topic would you most like to discuss?
Q14. Which focus group topic would you be most interested in?
I would be interested in a focus group mainly about the assessment process
I would be interested in a focus group mainly about how PIP supports daily life and extra costs
I would be interested in a focus group mainly about future policy and reform of PIP
I would be interested in any of these topics
I am not interested in taking part in a focus group
Submitting your response
In addition to UP’s own organisational submission, we would like to print and deliver a bundle of individual community responses directly to the Department for Work and Pensions – a powerful way to show the scale of feeling in our community.
Q15. Are you happy for your response to be included, in your name, in a printed bundle submitted directly to the government?
Yes – I am happy for my response to be included in my name
Yes – I am happy for my response to be included, but anonymously
No – I do not want my response to be included in the printed bundle
If yes, please provide your name as you’d like it to appear:
Submit
Should be Empty: