Blossom Family Needs Assessment
Families in Western New York raising autistic and neurodivergent children face long wait lists, fragmented services, and little help navigating complex systems. Many feel overwhelmed and isolated, especially those relying on Medicaid or supporting teens and adults. Blossom Autism & Family Collective addresses these gaps with family-centered navigation, caregiver education, and peer and community support that complement existing clinical and school-based services.
1. What is your relationship to the person with autism or other developmental disabilities?
Parent
Sibling
Caregiver
Friend
Other
2. What County/ City do you live in?
3. What resources do you believe are most needed for your family?
Educational support
Social activities
Accessing Medicaid Waivers
Respite care
Healthcare benefit navigation
Accessing Neurodivergent friendly providers
Medical complexities and comorbidities
4. How satisfied are you with the current services available to your family in Western New York?
Very dissatisfied
Dissatified
Satisfied
Very satisfied
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5. What is your primary source of information on autism or other developmental disabilities support services?
Internet
Support groups
Healthcare providers
Community organizations
Friends/Family
Social media
6. What is the age group of the individual(s) with autism or other developmental disabilities.
0-3
4-6
7-8
9-12
13-18
19-21
21+
7. Which type of educational setting is the person with autism or other developmental disabilities currently in?
Public school
Private school
Special Education Program
Homeschool
Daycare
Not in an educational setting
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8. What is the most challenging aspect of caring for a person with autism or other developmental disabilities?
9. How accessible are specialized services for autism or other developmental disabilities in your area?
Not accessible
Somewhat accessible
Very accessible
10. How often do you or the person with autism or other developmental disabilities participate in community activities?
Never
Rarely
Sometimes
Often
Always
11. What type of workshop topics would you be interested in attending?
12. What life skills would benefit the individual with autism or other developmental disabilities? i.e.. Puberty, college, driving
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13. What types of respite availability would benefit your family?
Weekend availability
Summer camps
Evenings
Before and afterschool
Daytime
14. What is the greatest need for your family?
Caregiver educational workshops
Life skill groups
Respite
Caregiver resources
Other (please specify)
15. What additional support would you like to see for families and individuals dealing with autism or other developmental disabilities?
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