Lived Experience Network

  • Lived Experience Network

  • Thank you for your interest in being considered for opportunities to share your experience and help improve life for people living with alopecia areata.

    Opportunities may include focus groups, interviews, patient panels, reviewing materials, media interviews, and other activities that support NAAF’s work and that of our partners. Some opportunities are paid, while others are volunteer-based.

    Participation is always optional. Completing this form does not obligate you to participate in any opportunity.

  • Format: (000) 000-0000.
  • Are you completing this form for yourself or on behalf of a minor child?*
  • Format: (000) 000-0000.
  • At its most severe, how would you describe your (or your child's) alopecia areata?*
  • Have you (or your child) tried any treatment for alopecia areata at any time?*
  • What treatments have you (your child) tried? (Select all that apply)*
  • Are you (or your child) currently on treatment for alopecia areata?*
  • What treatment(s) are you (or your child) currently using for alopecia areata?*
  • What type of health insurance is being used?*
  • Have you had challenges accessing treatment (e.g., insurance denials, expense, etc.)?*
  • If there were access challenges, have they been resolved?*
  • What types of opportunities would you consider (check all that apply):*

  • Privacy and Partner Information
    We respect your privacy. The information you provide will be used by NAAF to identify potential opportunities that may be a good fit based on your experience and preferences. NAAF does not sell your personal information.

    From time to time, NAAF may contact you about opportunities connected to external partners, including research organizations or industry partners. Your information will not be shared with those partners without your permission.

    Clinical/Research Disclaimer
    Any information shared through these opportunities is for educational, research, awareness, or engagement purposes only and is not medical advice. Participation in any opportunity is voluntary and does not guarantee eligibility for a clinical trial, research study, advisory group, or other activity. Inclusion in this database does not guarantee recommendation or selection for any specific opportunity. Individuals will be matched with opportunities based on factors including—but not limited to—experience, availability, opportunity-specific requirements, partner criteria, and geographic needs.

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