| AUG 31, 2026 (Mon.) |
| Time |
Agenda |
| 13:00 - 13:30 |
Registration |
| 13:30 - 13:40 |
Opening Remarks
Fei-Yuan (Sharon) Hsiao, President, TaSPOR
蕭斐元 理事長 |
Moderator/ Fei-Yuan (Sharon) Hsiao, President, TaSPOR
主持人：蕭斐元 理事長
|
| 13:40 - 14:00 |
The Healthcare Environment of Rare Disease in Taiwan
Hsueh-Yung (Mary) Tai, Senior Executive Officer, NHIA
戴雪詠 參議
|
| 14:00 - 14:20 |
RD Healthcare System and HTA Evolution: Thailand Experience
Sitaporn Youngkong, B.Pharm., M.Sc., PhD
Professor, Faculty of Pharmacy, Mahidol University, Thailand
|
| 14:20 - 14:30 |
Break |
Moderator/ Chia-Hui (Elise) Tan, Secretary General, TaSPOR
主持人：譚家惠 秘書長
|
| 14:30 - 14:50 |
Taiwan Rare Disease Patient Journey in Ecosystem (including NBS)
Yin-Hsiu (Nancy) Chien, M.D., PhD., NTUH
簡穎秀 醫師
|
| 14:50 - 15:10 |
Value Assessment of Rare Disease in Taiwan
Huang-Tz (Anita) Ou, Professor, NCKU
歐凰姿 教授
|
| 15:10 - 15:30 |
Voices into Impact: How Patient Engagement Reshapes Value and Reimbursement Decisions in Rare Diseases
Kuan-Ju (Ruth) Chen, Executive Director, TFRD
陳冠如 執行長
|
| 15:30 - 15:50 |
Teatime and break |
Moderator/ Bor-Sheng (Kevin) Ko, Director, NTU Cancer Center
主持人：柯博升 主任 |
| 15:50 - 16:50 |
Panel Discussion
【Panelists】
- Fei-Yuan (Sharon) Hsiao, President, TaSPOR
蕭斐元 理事長
- Hsueh-Yung (Mary) Tai, Senior Executive Officer, NHIA
戴雪詠 參議
- Sitaporn Youngkong, B.Pharm., M.Sc., PhD, Professor, Faculty of Pharmacy, Mahidol University, Thailand
Sitaporn Youngkong 教授
- Yin-Hsiu (Nancy) Chien, M.D., PhD., NTUH
簡穎秀 醫師
- Huang-Tz (Anita) Ou, Professor, NCKU
歐凰姿 教授
- Kuan-Ju (Ruth) Chen, Executive Director, TFRD
陳冠如 執行長
- Steven Huang, President, TODPMA
黃彥倫 理事長
|
| 16:50 - 17:00 |
Closing Remarks
Fei-Yuan (Sharon) Hsiao, President, TaSPOR
蕭斐元 理事長
|