| AUG 31, 2026 (Mon.) |
| Time |
Agenda |
| 13:00-13:30 |
Registration |
| 13:30-13:40 |
Opening Remarks
Fei-Yuan (Sharon) Hsiao, President, TaSPOR
蕭斐元 理事長 |
Moderator: Fei-Yuan (Sharon) Hsiao, President, TaSPOR
主持人：蕭斐元 理事長
|
| 13:40-14:00 |
The healthcare environment of rare disease in Taiwan
TBC, NHIA representative
健保署 官方代表
|
| 14:00-14:20 |
RD healthcare system and HTA evolution: Vietnam experience
Dr. Ong The Due, Vietnam MOH representative
|
| 14:20-14:40 |
RD healthcare system and HTA evolution: Thailand experience
Speaker: TBC, Thailand representative |
| 14:40-14:50 |
Break |
Moderator: Chia-Hui (Elise) Tan, Secretary General, TaSPOR
主持人：譚家惠 秘書長
|
| 14:50-15:10 |
Taiwan rare disease patient journey in ecosystem (including NBS)
Yin-Hsiu (Nancy) Chien, M.D., PhD., NTUH
簡穎秀 醫師
|
| 15:10-15:30 |
Value assessment of rare disease in Taiwan
Huang-Tz (Anita) Ou, Professor, NCKU
歐凰姿 教授
|
| 15:30-15:50 |
Voices into Impact: How Patient Engagement Reshapes Value and Reimbursement Decisions in Rare Diseases
Kuan-Ju (Ruth) Chen, Executive Director, TFRD
陳冠如 執行長
|
| 15:50-16:10 |
Teatime and break |
Moderator: Dr. Bor-Sheng (Kevin) Ko, NTU Cancer Center
主持人：柯博升 主任 |
| 16:10-16:50 |
Panel Discussion
【Panelists】
- Fei-Yuan (Sharon) Hsiao, President, TaSPOR
蕭斐元 理事長
- TBC, NHIA representative
健保署 官方代表
- Dr. Ong The Due, Vietnam MOH representative
- TBC, Thailand representative
- Yin-Hsiu (Nancy) Chien, M.D., PhD., NTUH
簡穎秀 醫師
- Huang-Tz (Anita) Ou, Professor, NCKU
歐凰姿 教授
- Kuan-Ju (Ruth) Chen, Executive Director, TFRD
陳冠如 執行長
- TODPMA representative
罕見疾病研發製藥發展協會 代表
|
| 16:50-17:00 |
Closing Remarks
Fei-Yuan (Sharon) Hsiao, President, TaSPOR
蕭斐元 理事長
|