Parent Meet Up Registration

Parenting while navigating ALS can bring emotions, questions, and changes that are difficult to carry alone. Our free monthly virtual Parent Meet-Ups welcome parents, caregivers, and people living with ALS who are raising or supporting children at any stage of the journey, including during caregiving, through changing family roles, and after the loss of a loved one.

This is a space to come exactly as you are. There is no pressure to have the right words, share more than feels comfortable, or be at a particular place in your experience. You are welcome to talk, listen, ask questions, or simply spend time with others who understand some of what you and your family may be carrying.

Together, participants can process the emotional and practical realities of ALS, connect through shared experiences, and discuss topics such as talking with children about ALS, navigating grief and uncertainty, caring for yourself while caring for others, adjusting to a life or family dynamic that looks different than expected, and finding helpful resources and support.

Facilitated by people with personal connections to ALS and caregiving, each gathering is intended to offer a warm, compassionate, and nonjudgmental environment where participants can feel less alone, relate to others, and find support for whatever they are navigating. When parents and caregivers feel supported, that care can extend throughout the entire family.

Meets virtually via Zoom on the third Monday of each month from 7:00–8:30 p.m. ET.

2026 Dates:
July 20
August 17
September 21
October 19
November 16
December 21

Name

First NameLast Name

Preferred pronouns

Email address

example@example.com

Phone Number

Format: (000) 000-0000.

I understand that Hope Loves Company may contact the Participant by email or text message about program information. By checking this box, I give consent for Hope Loves Company to contact the Participant at the email address and/or phone number provided above. Standard text messaging and data rates may apply.

Do you have any accessibility, communication, or participation needs we should be aware of?

Examples may include captioning, additional time to communicate, use of assistive technology, camera preferences, or another accommodation. (optional)

How are you connected to ALS, and what part of the journey are you currently navigating? Select all that apply.

Other

If you feel comfortable sharing, what is the name of the person living with ALS or the loved one you lost to ALS?

If you are living with ALS, you may enter “Self.” This information helps our facilitators better understand your connection to ALS and personalize the support they offer. (Optional)

What are the age ranges of the children or young people in your family? (select all that apply)

Please list the first and last name(s) of the child or children in your family who are impacted by ALS.

This information helps us connect members of the same family, maintain an accurate record of your family’s involvement with Hope Loves Company, and better understand and support your family’s needs. (Optional)

Have you, your child, or family ever received Hope Loves Company support services or participated as a volunteer? If so, please describe (e.g., date range, Camp HLC, support groups, Hugs of Hope, etc.).

(Optional)

What kinds of support would feel most helpful to you in this community? Are there specific topics you would like to see discussed? Is there anything that would make this space feel safer or more welcoming and supportive for you? (optional)

Is there anything else you would like us to know?

(Optional)

How did you hear about the HLC Parent Meet-Up?

(Optional)

Required Waiver and Policy Acknowledgments

Do you acknowledge that you have received, reviewed, understand, and agree to the following Hope Loves Company policies, waivers, agreements, and releases: Virtual Programming Participation Agreement and Release, Sexual Abuse Policy and Procedure Agreement, Confidentiality Policy, and Photo/Media Release.

By checking the box above and submitting this registration form, I confirm that I am the program participant listed above and that I am 18 years of age or older. I understand that my electronic submission, including my typed name and acknowledgment, serves as my digital signature and has the same meaning and intent as a handwritten signature.

Please list the full legal name of the Parent Meet-Up program participant. This name will be referenced in Hope Loves Company, Inc.’s Virtual Programming Participation Agreement and Release, Sexual Abuse Policy and Procedure Agreement, Confidentiality Policy, and Photo/Media Release presented above.

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Hope Loves Company Parent Meet-Up Registration