My PANS/PANDAS Story - Shared in Support of A9659A and S10208

My PANS/PANDAS Story - Shared in Support of A9659A and S10208
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How PANS/PANDAS has impacted my family:
Please share your family's story in your own words. There is no right or wrong way to answer—just write from the heart. You may wish to describe how your child's symptoms first began, which symptoms had the greatest impact, and how PANS/PANDAS has affected your child's ability to attend school, participate in sports or activities, maintain friendships, eat, sleep, leave the house, or function day-to-day. We also encourage you to share how this journey has affected your family, including your ability to work, your finances, your marriage or relationships, and siblings in the home. If you faced barriers to obtaining a diagnosis or treatment, including insurance denials or financial hardships, please tell us about those experiences as well. Finally, if your child has received treatment, we would love to hear what helped—whether antibiotics, anti-inflammatory medications, IVIG, plasmapheresis, therapy, or other interventions—or how limited access to insurance coverage and treatment has affected your child. If you need more space or would prefer to upload a typed letter, please use the file upload section below.
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I urge the support of A9659A and S10208 which would require insurance coverage for PANS/PANDAS medical and psychiatric treatment in New York State.
Important Disclaimer

Please note that although this information is being collected by Barb Shepard, LMHC, it is being collected solely for legislative advocacy purposes and not as part of the provision of mental health services.

Information submitted through this form is not protected health information under HIPAA, is not confidential, and does not create a therapist-client or any other therapeutic relationship with Barb Shepard, LMHC.

By voluntarily submitting this form, you acknowledge and understand that the information you provide may be shared, in whole or in part, with members of the New York State Legislature, legislative staff, governmental agencies, advocacy organizations, or other individuals involved in legislative efforts related to PANS/PANDAS. Once this information has been shared, Barb Shepard, LMHC has no control over how it may be further used, shared, or redisclosed by recipients.

Participation is entirely voluntary. You are under no obligation to complete this form and should use your own judgment and discretion regarding what information you choose to disclose. Please do not include any information you would not be comfortable having shared in support of these legislative efforts.

If you have any questions, concerns, or would like clarification about how your information may be used before submitting this form, please reach out prior to completing it.
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My PANS/PANDAS Story - Shared in Support of A9659A and S10208

How PANS/PANDAS has impacted my family:

I urge the support of A9659A and S10208 which would require insurance coverage for PANS/PANDAS medical and psychiatric treatment in New York State.