Irish Kidney Assocation - Planning for the Future Survey 2026

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1. When you think about the IKA, what 3 words spring to mind?

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2. Which of these IKA services / supports have you used?* An answer is required to this question

Patient support (financial)

Patient support (general queries, e.g. guidance with entitlements)

Patient accommodation (Kidney Support Centres)

Holiday home (Kerry or Waterford)

Arranging dialysis abroad

Counselling

Peer support

Living Well Programme

Informational webinars/talks

Attending IKA Branch social events

Attending the IKA Service of Remembrance and Thanksgiving

Support Magazine

IKA website

IKA social media

None of the above

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3. If you have received support from the IKA, which service(s)/support have you valued most and why?* An answer is required to this question

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4. How effective do you think the IKA's activities are in promoting awareness and understanding of organ donation in Ireland? Please scroll and select from the dropdown list below.

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5. In your view, what one action should the IKA prioritise to increase organ donor awareness over the next 5 years?

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6. What difference (if any) has involvement with the IKA made to your life?

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7. Looking at the range of services/activities the IKA provides, what (if anything) would you change, develop or add to enhance the IKA’s support for patients/families living with kidney disease?* An answer is required to this question

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8. How aware are you of the activities your IKA Branch engages in?* An answer is required to this question

Very aware

Somewhat aware

Not aware - don't know anything about IKA Branch activities

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9. How connected do you feel to your IKA Branch?

Very connected

Somewhat connected

Not connected

I am not aware of an IKA branch in my area

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10. What would encourage you to take part in your IKA Branch activities?

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12. Should the IKA play a greater role in awareness and campaigning to prevent kidney disease and promote kidney health?* An answer is required to this question

Yes

No

Unsure

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13. Core to the IKA’s work is influencing and lobbying on key issues for change for patients and families. What, for you, are the most important issues you would like to see the IKA advocate and campaign on?* An answer is required to this question

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14. As we develop our next Strategic Plan (2027–2031), we want to provide the most effective support we can. What would you like to see featured as priorities in this plan?* An answer is required to this question

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15. If you have any other comments or ideas that you feel would help us plan, please share them below.

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16. Are you completing this survey as a patient or a family member/friend? Please scroll and select from the dropdown list below.* An answer is required to this question

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17. Are you currently an IKA member?* An answer is required to this question

Yes

No

Unsure

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18. What is your age group? Please select from the list below* An answer is required to this question

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19. Which county do you live in? Please select from the list below.* An answer is required to this question

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20. Which of the following best describes the current stage of your care? Please select from the list below* An answer is required to this question

Pre-dialysis (chronic kidney disease, not on dialysis but under the care of a nephrologist)

On home dialysis

On hospital dialysis

Transplant recipient

I am a family member/friend/carer (not a patient)

Other

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21. We would also like to check if we may use your anonymous comments in our publicity materials to promote the IKA's work. Please indicate if you consent to this below.* An answer is required to this question

YESNO

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22. If you would like to enter our raffle draw for a Clayton Hotel voucher for completing the survey, please add your email or telephone number below.