Max Appeal Member Feedback Questionnaire

Max Appeal Member Feedback Questionnaire

Dear member, As Max Appeal enters into its 25th year we would love to hear from the people and families we support so we can develop our strategy, services and activities around what is important to you
1. What do you mainly Max Appeal for (tick all that apply)

Other - please describe
2. Do you have any suggestions or ideas about what you would like Max Appeal to help you with (if not covered above)?

3. Have you attended any of the following events or 22q community activities?

Rows	Attended Last Year	Have attended before, but not in the last year
22q at the zoo
Evelina Hospital day
Regional activity e.g. beach day or park-meet up with local host
Online events e.g. quizzes
Activity camps e.g. Cranham / Wiston Lodge
Academic conferences
Political events e.g. APPG, parliamentary events
Fundraising event e.g. Golf, Great North Run
Max Appeal AGM

Other - please describe
Please describe other events you have attended.
4. If you didn’t attend any activities or event(s) in the last year, would you like to tell us why, to help us plan suitable and accessible activities or events in the future?

5. Please tell us how you would rate the events/activities that you attended

Rows	Excellent	Good	Fair	Poor
22q at the Zoo
Evelina Hospital Zoo day
Regional activity e.g. beach day or park-meet up with local host
Online events e.g. quizzes
Activity camps e.g. Cranham / Wiston Lodge
Academic conferences
Political events e.g. APPG, parliamentary events
Fundraising event e.g. Golf, Great North Run

Other, please describe
What did you enjoy most about the event(s)?
6. What did you like least about the event(s)?
7. “22q at the Zoo” is a national event hosted by organisations all over the world, to bring together people with 22q11.2 deletion syndrome. Which UK zoo would you most like Max Appeal to visit next year?

Other - please describe
8. What activities or experiences would you like included in future events organised by Max Appeal?

Other - please describe

9. What is important to you when choosing whether to attend an event? How much does this affect your ability or interest in attending an event

Rows	A very big impact	A little	Not at all
How far I have to travel
Travel costs
Public transport available
Family friendly activities on site
Family friendly activities organised by Max Appeal
Disabled access
Accommodation nearby
Meeting up with other 22q families
Access to advice from specialists e.g. speech and language therapist, physio
Information about 22q
Other

Other
10. Would you be interested in taking part in any of the following events or activities? Please tick all that apply.

Other - please describe
11. Max Appeal is run by a small team of parent-volunteers. Would you be happy for us to contact you about volunteering or fundraising? Please provide your email address below if so:
Email address - I give consent for you to contact me about Fundraising/Volunteering/Trustee Opportunities
12. Is there anything else you would like to tell us about what is important to you, or what would be helpful for you?
13. Would you be happy to help share a bit of information about yourself, to help us design and deliver suitable events and activities?Age of person affected by 22q11.2 deletion syndrome in your family
Please tell us where you live, using region (e.g. SouthEast), county (e.g. East Sussex) or area (e.g. Brighton and Hove).
Please enter your email address below if you would like to be entered to win a £20 Amazon voucher. Five winners will be selected at random and notifiedby email. The winners’ names will be announced in the next Max Appeal ewsletter. If you would prefer not to have your name announced in the newletter, you can let us know.
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