• Request a One-on-One Porphyria Expert Appointment

  • A limited number of complimentary, 20-minute appointments with porphyria experts will be available to registered attendees at Porphyria Palooza 2026.

    Please complete this form to request an appointment. Because availability is limited, submitting this form does not guarantee an appointment. UPA will contact you if an appointment is available.

  • Patient's Age Group*

  • Please provide the name and contact information of a parent or legal guardian.

  • Phone Number*
  • Type of Porphyria*
  • Do you have doctor who treats your porphyria?*
  • Are you registered for Porphyria Palooza?*

  • Appointment Options

  • Appoint options are:

    Individual porphyria consultation with Dr. Bruce Wang: An in-depth conversation about the patient’s specific porphyria questions, medical history and care considerations.

    Porphyria education appointment with Dr. Amy Dickey Yeung: An individual conversation focused on general porphyria information. Dr. Yeung cannot review the patient’s individual medical situation or provide personalized medical advice or care recommendations.

  • Which appointment would you like to request?*

  • Important Appointment Information

    These appointments are offered as a limited educational and consultation opportunity during Porphyria Palooza. The experts cannot order testing or write prescriptions during the appointments.

    Dr. Yeung’s appointments are limited to general porphyria education and cannot include individualized medical advice or care recommendations.

  • Potential Travel and Accommodation Expense Reimbursement

  • Patients who receive an appointment with Dr. Bruce Wang may be eligible for reimbursement of certain travel and accommodation expenses through The Assistance Fund’s Porphyria Financial Assistance Program.

    Reimbursement is determined solely by The Assistance Fund. An appointment does not guarantee TAF enrollment, eligibility or reimbursement. Patients should confirm their eligibility and covered expenses directly with TAF before making travel arrangements.

    Learn more about eligibility requirements and apply at The Assistance Fund’s Porphyria Financial Assistance Program.

  • Are you part of The Assistance Fund (TAF)'s porphyria program?*

  • Acknowledgement

  • Should be Empty: