PULSE Interest

Join PULSE

Tell us you're interested in participating in the Porphyria U.S. Longitudinal Study of Evalution
PULSE is the largest study of its kind in the world for people living with porphyria. Share a few details below and a study coordinator will reach out to talk with you about joining, in person or from home. Filling out the form takes about 2 minutes. Submitting this form does not enroll you in the study.
Your Name

First NameLast Name
Email
example@example.com
Phone Number
Please enter a valid phone number.Format: (000) 000-0000.
Preferred Contact Method
State of Residence
About the Person Joining
I am filling this out for:
Name of person I'm filling the form for
Your relationship to them

Other
Age of person interested in participating in PULSE:
Porphyria
Type of Porphyria
Has the diagnosis been confirmed?
Have you taken part in the Porphyria Longitudinal Study before?
At which site were you enrolled in the Porphyria Longitudinal Study?
Do you see a porphyria specialist?
Specialist Name
Specialist Location
Preferences
How would you prefer to participate in PULSE?
Preferred language:

Other
How did you hear about PULSE (select all that apply):

Other
Permission
I agree that UPA and APEX may share my information with a PULSE study site so they can contact me about joining
Should be Empty:

Join PULSE