Study/Research Share Request
Thank you for your interest in partnering with DSDN to dig deeper into issues/information related to a Down syndrome pregnancy or raising a child with Down syndrome.
About DSDN
DSDN is the largest national organization supporting new and expectant parents with a Down syndrome diagnosis. In our online groups, we welcome over a thousand new parents with a child with Down syndrome each year. The mission of DSDN is to connect, support, and provide accurate information to parents - and the medical professionals who serve them - from the time of diagnosis through age 3, while fostering the opportunity for life long connections. Our vision is that every Down syndrome diagnosis will be delivered in an unbiased, factual, and supportive way every time, and that families can quickly find meaningful connections.
Next Steps:
Our team will review all requests and respond within 1 week. If this aligns with our mission, we will share with applicable groups within our network (by social media and/or email). DSDN receives many opportunities each year to enable our members to share about their experiences. It is important to our leadership team that we share reputable, authentic opportunities and also review and share the data and products resulting from the important research completed. Within 3 months of completing your work and/or publishing your findings, you agree to share the results/product with DSDN.
Name
First Name
Last Name
Email
example@example.com
University, Academic Entity or Organization affiliation for this work?
Have you received IRB approval for this study?
Yes
No
Upload IRB approval letter
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What is the focus of your study?
What is your working hypothesis?
What do you hope to gain from this work?
Besides DSDN members, how else will you be gathering data?
Before publication, DSDN will be notified and have time to review the work if we will be listed as a resource and means of data collection within your study
Yes
No
Within 3 months of completing/publishing your study, I will share the final product with DSDN by emailing medicaloutreach@dsdiagnosisnetwork.org
I agree
If approved, we will share this out to the appropriate groups via social media and/or email. Please provide a brief summary/paragraph that we can share with DSDN members about this opportunity
How should people participate?
Include link or email
What is the timeline for your work?
What is the deadline for your work?
Are there any location restrictions for your participants?
For example, specific states or countries
Is this limited to those in the US?
Yes
No
Other
What is the eligibility criteria for your participants?
For example, parents of a specific-aged child with Down syndrome
Is this limited to English speaking respondents?
Yes
No
Other
Please upload a picture or graphic for us to share with this opportunity
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