Expert by Experience

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Why are we asking these questions?

We are launching a Culturally Appropriate Advocacy service in Greater Manchester. This service will work with people of Black, Asian and Minority Ethnic backgrounds who have experience of being detained under the Mental Health Act. We want to hear from you.

What is an 'Expert by Experience'?

Experts are not just professionals. Your experience of accessing mental health services makes you an expert in knowing what we need to do to improve these services.
We define ‘Experts By Experience’ in this case as a person who has a lived experience with mental health struggles.

Our new service aims to:

Provide Culturally Appropriate Advocacy to People of Colour in Greater Manchester who are detained under the Mental Health Act.

Meet the cultural needs of people of colour by collaborating with those with Lived Experiences.

Combat inequalities which exist within mental health services

Contribute towards community and systemic change

Raise awareness of the issues BAME people face when accessing Mental Health services.

Improve Culturally Appropriate services in Greater Manchester’s mental health care.

Who are we?

We are the Culturally Apprpriate Advocacy Service and we're a partnership between two charitiies: Gaddum and African and Caribbean Mental Health Services (ACMHS)

You can get in touch us with us by emailing: advocacy@gaddum.org.uk

Where does this data go?

We will use this data to design our Culturally Appropriate Advocacy service. We will ask you questions about your identity and your experiences. This information will be stored on Gaddum's secure database.

You can ask for a copy of your data or for this data to be deleted at any time. We can also provide you with our 'Confidentiality Statement' which explains how we manage your data and maintain your confidentiality.
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What is your name?* This field is required.
First Name
Last Name
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What is your date of birth?* This field is required.
Date
Year
Month
Day
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Please let us know about any support you need to take part in in person or online group workAt Gaddum, we treat everyone as an individual and we want to make sure we make our group spaces accessible for you. If there is anything we can do to help you engage in our group sessions, please let us know.
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Have you ever been detained (aka "sectioned") under the Mental Health Act?* This field is required.
YESNO
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Have you been detained (aka "sectioned") under the mental health act within the last 12 months?* This field is required.
YESNO
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How long have you been detained for under the Mental Health Act?* This field is required.
Please Select
Please Select
Not Applicable
0-6 months
6-12 months
1-3 years
3+ years
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If you have been previously detained, can you tell us which hospital/borough you were detained in?
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Did you interact with the police during the time you were detained?
YESNO
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Have you been detained under section 135 or section 136 of the Mental Health Act?* This field is required.Section 135 detainment under mental health act is where police transport you from your home to "a place of safety", such as a hospital, care home, police station or any other place where you would be deemed to be 'safer'. Section 136 is where you are transported from a public place to "a place of safety"
YESNO
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Drawing on your experiences, what support do you think should be provided to prevent people from a Black, Asian and Minority Ethnic background from being detained under the Mental Health Act (aka sectioned)?
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Are you or have you ever been placed on a Community Treatment Order (CTO)?* This field is required.
YESNO
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Do you feel you have had support from Community Mental Health Teams?* This field is required.
Please Select
Please Select
Yes
No
Not applicable
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Have you had access to any other support-based services? * This field is required.
YESNO
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Are you aware of the advocacy role in mental health? * This field is required.
YESNO
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Have you ever received advocacy support?* This field is required.
YESNO
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Were you ever informed of advocacy (IMHA) whilst on the wards?* This field is required.IMHA stands for Independent Mental Health Advocate. Everyone detained ("sectioned") under the Mental Health Act is entitled to an IMHA.
YESNO
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Were you informed of your rights when on the wards?* This field is required.
YESNO
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What issues would you like a mental health Advocate to help you with?* This field is required.
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What is the best way for an advocate to communicate with you?* This field is required.
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We are planning to run Culturally Appropriate Advocacy groups on the wards and in the community. What topics would you like to discuss in your group advocacy sessions?* This field is required.Try to think of issues or concerns where you may have had a lack of information on when receiving care from mental health services.
Establishing respect for cultural identity amongst staff.
My rights.
Navigating race and racism as a service user.
Fostering self-advocacy and advocating for others.
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Have you ever experienced racism or discrimination in a mental health setting?* This field is required.
YESNO
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Do you feel you received support after the incident?* This field is required.
YESNO
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If you feel able to, please tell us what happened* This field is required.
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Did you feel mental health professionals understood your cultural needs? * This field is required.
YESNO
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What do you think needs to change to better support people from Black, Asian & Minority Ethnic backgrounds in mental health settings? * This field is required.
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When accessing mental health services, do you require an interepreter?* This field is required.
Yes
No
Not applicable
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If you answered yes to the above, was one provided on request?* This field is required.
Yes
No
Sometimes
Not applicable
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Have you ever felt isolated on the ward because of your race & how you express yourself through language, dress or spiritual/religious expression?
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Ok
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'BAME' stands for Black Asian and Minority Ethnic. It is used by the NHS to describe people in the UK who are from an ethnic minority background. What do you think of this term and what terms would you like to us?* This field is required.
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What cultural practices are important to you?* This field is required.
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Are you able to attend future group sessions?* This field is required.
YESNO
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Would you like to attend one-to-one sessions?* This field is required.
YESNO
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How would you like to tell your story?* This field is required.
Art and Design
Music
Online sessions
Audio recording
Spoken word
Short story/poetry
Q&A/feedback forms
Group sessions
Written word
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Would you like a resource kit providing information on culturally appropriate services in Manchester?* This field is required.
YESNO
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Is there anything else you would like to express about your experience?
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Please select the option which best describes your ethnicity from the list below.* This field is required.
Please Select
Please Select
Asian or Asian British Bangladeshi
Asian or Asian British Indian
Asian or Asian British Pakistani
Any other Asian or Asian British background
Black or Black British African
Black or Black British Carribbean
Any other Black or Black British Background
Chinese
Mixed White and Asian
Mixed White and Black African
Mixed White and Black Caribbean
Other Mixed Background
Other White Background
White British
White Irish
Prefer not to say
Other
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Other ethnicity- please state.If the above options do not suit you, please describe below here:
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What is your preferred language?* This field is required.
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What is your religion or belief?* This field is required.
Please Select
Please Select
No religion
Agnostic
Buddhist
Christian (including all denominations)
Hindu
Humanist
Jewish
Muslim
Sikh
Prefer not to state
Other
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Other religion or belief- please state.
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Please select the term below which best describes your gender* This field is required.
Please Select
Please Select
Male
Female
Non-Binary
Prefer not to say
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Do you identify as transgender?
Transgender
Not transgender
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How would you best describe your sexual orientation?* This field is required.
Please Select
Please Select
Heterosexual (straight)
Gay
Lesbian
Bisexual
Pansexual
Queer
Prefer not to say
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Do you have a disability? Please check the relevant boxes.* This field is required.
No disability
Physical health condition
Mental health condition
Learning difficulty or disability
Long term health condition
Neurodivergent conditions e.g. Autism/ADHD
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Thank you for taking part in this co-production survey; we greatly appreciate it. Your responses and input will help inform future co-production sessions we run with fellow ‘Experts by Experience’.

Our first session will be ran between the 14th to 16th of November. Vouchers will be offered. Please save the date and the meeting link to your calendar:

https://us02web.zoom.us/j/87835360462?pwd=c1dvUklsOGxqOVRxamN4cW56ZmtVZz09
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