• Breaking Through the Clouds: Unstoppable. Empowered. Rising Together.

    Applicants must be 18 years of age or older

    There is no cost to attend this event

    Thank you for your interest in attending this special conference designed specifically for women with hemophilia, rare factor deficiencies, and Glanzmann’s Thrombasthenia (GT). This application is your first step in requesting to attend the conference. Selection is not guaranteed and will be based on eligibility requirements, available space, and the criteria outlined below.

    Eligibility Requirements

    This conference is intended for women with a diagnosis, carrier status, or family history of hemophilia or a rare factor deficiency, as well as women diagnosed with Glanzmann's Thrombasthenia.

    Applicants must meet one or more of the following criteria:

    • Have a diagnosis of hemophilia A (Factor VIII) or hemophilia B (Factor IX).
    • Be a carrier of hemophilia A or B and experience bleeding symptoms.
    • Have a diagnosis of, or be a carrier experiencing bleeding symptoms of, one of the following rare factor deficiencies: Fibrinogen (Factor I), Prothrombin (Factor II), Factor V, Factor VII, Factor X, Factor XI, or Factor XIII.
    • Have a diagnosis of Glanzmann's Thrombasthenia.
    • Have a family history of hemophilia or a rare factor deficiency and experience bleeding symptoms that may be related to a bleeding disorder.
       

    Please Note: Eligible applicants who are employed by or reside in a household where a family member is employed by industry are required to indicate this on their application. These applicants will initially be placed on a waiting list, and priority will be given to eligible non-industry/non-industry related applicants for acceptance to the conference.

    Given the sensitive nature of topics covered, and personal experiences shared by attendees, industry, and industry-related attendees will be required to follow a strict code of conduct throughout the event that respects the privacy and integrity of fellow participants and supports conference goals.

    Industry is defined as: pharmaceutical manufacturers, specialty pharmacies, home care companies, or other organizations serving the bleeding disorders community.

    Diagnoses Not Addressed at This Conference

    Please note that the following conditions are not the focus of this conference:

    • Von Willebrand Disease (VWD)
    • Low Factor VIII associated with a VWD diagnosis
    • Factor V Leiden

    Travel and Lodging

    The conference will be held at the Westin Detroit Metropolitan Airport Hotel.

    Transportation and lodging are provided at no cost for approved attendees residing in the 48 contiguous United States and Puerto Rico. Attendees living more than 300 miles from the venue will receive airfare assistance. Attendees living within 300 miles of the venue will be reimbursed for eligible fuel expenses.
     

    For more information about speakers, sessions, and conference activities, please visit the Women's Conference event page.

    For questions, please contact: Shari Luckey sluckey@hfmich.org

    Submission of an application does not guarantee acceptance

    HFM reserves the right to approve or deny participation at its discretion

  • Attendance and Cancellation Policy


    If you are selected to attend the 2026 National Women's Conference and later find that you cannot attend, please notify Shari Luckey at sluckey@hfmich.org immediately.

    Important: If you do not attend the conference and do not notify HFM in advance, you will not be eligible to attend the National Women's Conference in 2027.

    This policy helps us make the best use of limited funding and available space. When participants cancel at the last minute or do not show up, it affects program planning and prevents those on the waitlist from attending.

    By letting us know as soon as your plans change, you help us offer opportunities to others and ensure a positive experience for all attendees, speakers, volunteers, and staff.

    Thank you for your cooperation and understanding.

  • Waiver and Release of Liability


    The Hemophilia Foundation of Michigan (HFM) is committed to providing a safe environment for all participants, including community members, healthcare providers, presenters, exhibitors, volunteers, and staff. However, participation in any event involves certain risks.

    By attending this event, you acknowledge and agree to the following:

    Assumption of Risk
    I understand that participating in this event may involve known and unknown risks, including the risk of illness, injury, property damage, or other losses. I voluntarily choose to participate and accept these risks.

    Release of Liability
    I release and discharge HFM, its employees, volunteers, agents, and representatives from any claims, liabilities, damages, or demands arising from my attendance or participation in this event, to the fullest extent permitted by law.

    Indemnification
    I agree to hold harmless and indemnify HFM from any claims, losses, damages, costs, or expenses, including reasonable attorney fees, resulting from my actions or participation in the event.

    Medical Treatment
    If emergency medical treatment is needed during the event, I consent to receiving such care. I understand that I am responsible for any costs associated with that treatment.

    Severability
    If any part of this agreement is determined to be invalid or unenforceable, the remaining provisions will remain in full force and effect.

    Entire Agreement
    This waiver represents the complete agreement between HFM and me regarding participation in this event and replaces any prior discussions or agreements on this subject.

    Governing Law
    This agreement will be governed by and interpreted according to the laws of the State of Michigan.

    Acknowledgment and Consent
    I understand that this waiver releases HFM from liability for injury, illness, death, property damage, or property loss that may occur in connection with this event, including claims arising from negligence to the extent permitted by law.

  • No Recording Policy

    To protect the privacy of participants and the intellectual property of presenters, recording is not permitted during HFM programs.

    By participating, you agree not to record, photograph, save, share, livestream, or post any session content, presentations, or photos without prior written permission from HFM.

  • Photo and Video Notice


    Photographs and video recordings may be taken during this event for educational, promotional, fundraising, and historical purposes. By attending, you grant the Hemophilia Foundation of Michigan (HFM) permission to use photographs, video recordings, and quotes in which you may appear in print and electronic communications, including publications, websites, social media, and other marketing materials, without compensation.

    If you do not wish to be photographed, please email sluckey@hfmich.org to be added to the no-photos list. Please note that it is your responsibility to avoid being photographed and to refrain from participating in group photos.

  • Demographics

    For data collection purposes only. This information will be used anonymously and will not be shared with any identifying details.

  •
  • Are you an HTC healthcare professional?*
  • Date of Birth (must be at least 18 years old to apply)*
     / /
  • If selected to attend, would this be your first year attending the conference?*
  • What years did you attend? (select all that apply)*
  • If you have attended this conference previously, what actions did you take as a result of your participation? (Select all that apply)*

  • As we are preparing to celebrate our 10-year anniversary in 2027, we are excited to have a film crew joining us to help capture and commemorate this special milestone. If selected, would you be willing to participate in a brief interview to share your story and experiences?

  • Emergency Contact Information

    Please provide the following information, in case of emergency 
  • Format: (000) 000-0000.

  • Bleeding Disorders Community Engagement

    Help us understand your current engagement with the bleeding disorders community and related organizations.
  • Are you connected to your local bleeding disorders chapter, organization, or support group (for example, by attending events, programs, or educational activities)?*
  • May we share your name with your local bleeding disorders chapter to let them know you attended the National Women's Conference?*
  • Which national bleeding disorders organizations do you currently participate in? (Select all that apply)*

  • Do you work for, consult with, or serve on the board of a bleeding disorders organization?*

  • Are you or anyone in your household employed in the bleeding disorders industry, including pharmaceutical manufacturer, specialty pharmacy, home care company, or another organization that serves the bleeding disorders community?*

  • Your completed application will be placed on a waiting list, and priority will be given to eligible non-industry/non-industry related applicants for acceptance to the conference.

    Given the sensitive nature of topics covered, and personal experiences shared by attendees, industry, and industry-related attendees will be required to follow a strict code of conduct throughout the event that respects the privacy and integrity of fellow participants and supports conference goals.

  • Speaker Information Needed:

    This will help us prepare printed materials, update our website, and ensure we are fully prepared for your presentation.
  • If you would like us to use a previously submitted professional biography for the conference app please indicate that below. Otherwise provide a brief professional biography in the space provided, or you may email it to  sluckey@hfmich.org.*
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  • If you would like us to use a previously submitted headshot for the conference app, please indicate that below. Otherwise, please upload a current headshot or email it to sluckey@hfmich.org.*
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  • Will you be creating a PowerPoint presentation? If yes, HFM will email you a PowerPoint template. Final presentations are due to HFM staff by September 15.*

  • Main stage conference presentations will be made available to attendees and sponsors after the conference in PDF format. If you prefer that your presentation not be distributed, please check the box below:

  • Diagnosis & Care

  • Have you been diagnosed with a bleeding disorder by a hematologist?*

  • If you have not received a bleeding disorder diagnosis, what barriers have you encountered? (Select all that apply)*

  • What is your diagnosis or suspected bleeding disorder? (check all that apply)*

  • Please Note: Von Willebrand Disease (VWD), including cases with low Factor VIII levels, is not classified as hemophilia. This conference is specifically focused on hemophilia and rare factor deficiencies.

    However, we encourage individuals with VWD to explore the following resources for information and support:

    Hemophilia Federation of America

    National Bleeding Disorders Foundation

    VWD Connection Foundation

  • Are you related to someone with a bleeding disorder?*
  • If you are not related to someone with a bleeding disorder and have not been diagnosed, what led you to believe you may have a bleeding disorder?*

  • Rows
  • How old were you when you were diagnosed with a bleeding disorder? (If you are unsure, please select your best estimate.)*
  • Are you under the care of a hematologist?*
  • Do you receive care at a Hemophilia Treatment Center (HTC)?*
  • Are you currently seen in a specialized clinic for women and girls that includes a hematologist, obstetrician-gynecologist (OB-GYN), and social worker?*
  • How do you access your care team?*

  • How do you treat bleeding episodes?*

  • Have you ever participated in a research study about your bleeding disorder?*
  • Are you familiar with the term ‘pharmacokinetics’? Choose one option.*

  • Bleeding Disorder History

  • Have you experienced joint pain in the last 12 months?*
  • Have you used over-the-counter pain medication or other non-prescription treatments in the last 12 months for your joint pain? (check all that apply)*

  • Have you used prescription pain medication in the last 12 months for your joint pain?*
  • Was the prescription pain medication you received for joint pain effective?*
  • Have you been prescribed any of the following treatments in the last 12 months for your joint pain? (check all that apply)*

  • Was the treatment you received for joint pain in the last 12 months effective?*
  • Have you experienced excessive uterine bleeding in the last 12 months?*
  • What type of excessive uterine bleeding have you experienced in the last 12 months? (Check all that apply)*

  • In the past 12 months, have you received treatment for iron deficiency (e.g., oral or IV iron)?*
  • Have you experienced uterine challenges in the last 12 months?*
  • Which of the following uterine challenges have you experienced in the last 12 months? (Check all that apply, or specify type you have experienced)*

  • Leader in Action (LIA) Small Groups

    Small group breakout sessions are led by a Leader in Action (LIA) member and are designed to foster meaningful conversations and connections among attendees who share common experiences, interests, or backgrounds. 

  • Cohort Group Categories

    (Please review the descriptions before ranking your choices below)

    • Young Adult (Ages 18–34) - For women navigating early adulthood, identity, independence, relationships, and managing a bleeding disorder in work, school, or new life stages.
    • Midlife (Ages 35–55) - For women balancing caregiving, careers, personal health, and evolving roles—while living with or managing hemophilia or a rare factor deficiency.
    • Prime Time (Ages 55+) - For women in later stages of life, reflecting on lived experience, aging with a bleeding disorder, advocacy, and legacy.
    • Family Planning - For those exploring fertility, pregnancy, parenting, and reproductive health while living with a bleeding disorder or carrying a genetic trait.
    • Hemophilia A - For women with Hemophilia A, including carriers with symptoms, looking to connect with others who share this diagnosis, explore how it impacts daily life, and support one another through shared understanding.
    • Hemophilia B - For women with Hemophilia B, including carriers with symptoms, looking to connect around shared experiences, how this condition impacts daily life, and ways to manage care and advocacy.
    • Ultra Rare Bleeding Disorder - For women diagnosed with rare factor deficiencies (e.g., Factor I, II, V, VII, X, XI, XIII, or Glanzmann's Thrombasthenia). This group offers space to share unique experiences and build community around lesser-known bleeding disorders.
    • Para hispanohablantes - Dirigido a mujeres que se sienten más cómodas recibiendo información y participando en conversaciones en español. Conéctese con otras asistentes hispanohablantes, comparta experiencias, haga preguntas y participe en conversaciones significativas en un entorno acogedor y estimulante.

  • Your Feedback

  • Hotel

  • HFM has secured a limited room block for our industry partners. We encourage you to reserve your accommodations as soon as possible, as rooms are limited and the group rate will be available until the block is filled or the cutoff date.

    https://link.edgepilot.com/x/5YVXQFo5PmXXhKmRP38ROpg?u=https://app.marriott.com/reslink?id=1779834673259%26key=GRP%26app=resvlink 

  • What nights will you be staying at the Westin Detroit Metropolatin Airport in Detroit, Michigan?*
  • Do you require a mobility device for use within the hotel? Please select “Yes” only if this accommodation is necessary. We will make every effort to secure a device and have it available upon your arrival in the hotel; however, quantities are limited and availability is not guaranteed. A staff member will contact you if we are unable to fulfill your request.*
  • Please indicate your preferred room type. (Note: Room types are subject to availability and cannot be guaranteed)*
  • Special Dietary Needs or Allergies (Please note: This is a nut-free event. We will work with the hotel to accommodate your needs to the best of our ability.)*

  • Travel

    Air travel will be arranged for attendees who live more than 300 miles from the conference location. Attendees who live within 300 miles may request fuel reimbursement. Attendees are encouraged to coordinate their own carpooling when possible.
  • How do you plan to travel to the conference?*

  • Airline Travel
    To coordinate airline travel, we have partnered with ASK Travel Services. If you are selected to attend and meet the distance requirement, HFM will share your contact information (phone and email) with our travel agent, Angie Shaw. She will reach out within 14 days of your acceptance to coordinate your flight arrangements.

    Please Note:
    HFM is unable to reimburse the following travel-related expenses:

    • Transportation to/from your home airport
    • Parking at your home airport
    • Baggage fees
    • Meals or snacks while traveling

  • Driving & Fuel Reimbursement
    Fuel reimbursement is available for those who are driving to the conference.
    If you plan to drive and would like to request fuel assistance, please contact Kaite Scott at kscott@hfmich.org.

    Please Note:
    HFM is unable to reimburse meals or snacks while you are traveling.

  • You can make a difference!

    Please consider contributing an amount that is meaningful and comfortable for you to help support this conference. Donations are completely optional and will be hidden during the participant selection process to ensure they have no influence on acceptance decisions. Please note that making a donation does not guarantee selection to attend the conference.
  • HFM relies on generous donations from community members and supporters to make programs like the National Women’s Conference—and many other services—accessible to everyone in the bleeding disorders community. Please consider making a contribution to support education, meals, transportation assistance, lodging, and meaningful opportunities for connection among women nationwide. Your support helps ensure this empowering conference remains accessible to all eligible individuals, regardless of financial circumstances.

  • Payment Information

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