2026 Patient 360: Patient Experience Survey

  • IgNS Patient Experience Survey

  • Thank you for your interest in this confidential survey. Your feedback is very important to IgNS. This survey is anonymous (we will not be asking for your personal information). The survey will help us learn more about patients’ experience with immunoglobulin (Ig) therapy, understand your challenges, and assess how the healthcare team supports the patients. Our goal is for all patients to receive the highest quality of care at every immunoglobulin infusion.

    The survey will take about 10 minutes to complete. We appreciate your time and thank you for participating!

  • Introductory Questions

  • In continuing with this survey, you attest that you are 18 years or older.

  • In continuing with this survey, you attest that you are 19 years or older.

  • In continuing with this survey, you attest that you are 21 years or older.

  • Before your diagnosis, please estimate how many times you visited the following care centers in an average year (frequency): 

  • Ig Therapy Specific Questions

  • During the past year, which of the following issues have you experienced with SCIG/fSCIG infusion?

  • If so, was it:

  • Healthcare Provider Related Questions

  • Please indicate the extent to which you agree with the following statements:

  • Please indicate the extend to which you agree with the following statements. If you receive IVIG, please refer to the ongoing nurse care you receive during treatment. If you are self-infusing SCIG/fSCIG, please refer to your experience while a nurse was providing education and training.

  • Please indicate your level of agreement with the following statements:

  • Take a moment to think about the primary Ig Therapy Provider (e.g., your specialty pharmacy/home infusion nurse, pharmacist, doctor's office/clinic nurse, or infusion center nurses). Overall, how much do you agree or disagree with the following statements?

  • How helpful can the IgNS organization be to you in the following areas?

  • Thank you for taking the time to complete this survey. Your feedback is very important and will help IgNS improve clinical practice and patient care. If you have any questions about IgNS, our Patient 360 program, or this survey, please get in touch with us at info@ig-ns.org.

  • Should be Empty: