Colive Voice

Welcome!
Monitoring your health thanks to your voice will soon be possible

Colive Voice is an international academic research study, led by the Luxembourg Institute of Health. It aims to identify vocal biomarkers to improve and simplify the regular monitoring of serious diseases such as cancer, diabetes, COVID-19, mental health, multiple sclerosis, inflammatory bowel diseases... Thus, we can shape the future of digital health and telemedicine for millions of patients.

To achieve this goal, we need many participants worldwide who speak different languages, are healthy or have various health conditions.
Why should you take part in Colive Voice?

By helping us, you contribute to the development of augmented healthcare thanks to better and easier remote disease monitoring using voice. Your input will ultimately help millions of patients daily!

Voice-based monitoring is:
- Non-invasive
- Executed at home
- Allows early diagnosis
- Voice-based medical data can be transmitted in real-time to your healthcare professional
- Safer for medical teams in case of contagious disease
Vocal biomarkers will enable easier life, with less pain, less fatigue, and less waiting for an appointment.
If you want to participate, read the consent information below

Read consent information
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Information and Consent

The present information is directed to the participants of the survey submitting their recordings via the website.

What is Colive Voice?

The Colive Voice research project aims to see if we can identify vocal biomarkers of severe conditions and frequent health symptoms. This is a Luxembourgish initiative aiming to collect data from participants of several countries. The project is based on digital technologies and statistical algorithms. This research initiative is handled by the Deep Digital Phenotyping Research Unit from the Luxembourg Institute of Health.

What is a vocal biomarker?

A "vocal biomarker" is a feature in your voice, or a combination of features that can help to detect a health condition or to monitor a specific symptom. Thanks to this research, one day, we may be able to easily monitor our health, for example by talking to our smartphone.

How to identify vocal biomarkers?

To achieve this objective, the researchers need to build a large multilingual database of vocal records combined with health data. Based on this, they will detect specific health characteristics from the voice, using machine learning techniques i.e. algorithms that can learn from data and identify patterns (biomarkers) with minimal human intervention. The accuracy of the algorithms is improving over time, with the addition of more data from other participants.

How do I participate?

Donate your voice! Participation is anonymous. Once you have consented to participate you will have to answer a few questions related to your health and then perform consecutive voice recordings.

How can I contribute more to medical research?

Your participation is very important for this research, we thank you in advance for it. The more participants there are, the more precise the results will be, so please share this link to your friends, family and on social media. We will provide you a link to share the project at the end of the survey.

Categories of data collected

Your participation in the study involves collecting personal data about you to the extent that it is necessary to meet the scientific objectives of the study. Data will be collected just once, when completing this survey, we will not revert back to you for additional requests.

In particular will be collected:

Basic information: demographic factors (age, gender, language, ...), lifestyle factors (alcohol, smoking...) and anthropometric factors (weight, height, ...)

Health data: health status (symptoms, treatments, diseases), psychological health

Voice records (please note that your device will ask you to access to your microphone and that you have to acept in order to perform the voice records)

Technical data: date and time of completion of the survey. Upon submission of the survey, your IP address alone will be securely transferred to ipstack.com, an external service provider, whose only purpose is to determine the country of origin of your current IP address. Your country of origin will be storred in our database. Your IP address will not be stored by ipstack.com and will not be stored in the Colive database.

No personal data is collected which would allow us directly to identify an individual. We do not collect any identifying data such as your name, email address, date of birth or any other unique piece of identification. The data that we collect is held so it cannot be put together ("linked") to identify a user specifically.

Data controller

The Luxembourg Institute of Health (LIH), having its registered address at 1A-B, rue Thomas Edison L-1445 Strassen, LUXEMBOURG, is data controller of the research project "Colive Voice" in the meaning of the European General Data Protection Regulation (GDPR).

This means that LIH is responsible for the collection, analysis and more generally for processing your personal data and ensures their protection, in accordance with the GDPR and any subsequent text replacing or supplementing this text (in particular the law of August 1, 2018 on the organization of the National Commission for Data Protection and GDPR Implementation).

Purpose and legal basis for data processing

The use of your personal data is necessary to enable us to achieve the aims of the study, which we are conducting in the public interest and for the purposes of scientific research (art. 6.1e and art. 9.2j of the GDPR).

Data sharing

The data collected in the frame of this project may be shared in the future for research purposes in similar health research areas but only in an anonymous form.

Data hosting

All study data is collected using the Jotform, Inc. electronic tool (USA), which allows for the creation of secure online questionnaires to collect data. Data collected via Jotform, Inc. is securely stored in Europe (Germany). Questionnaires are encrypted for additional security. Jotform, Inc. is the Data Processor of LIH, which is conducting the study and is used to collect data from the survey questionnaire. Once collected, the data is transferred to LIH’s secure servers and permanently deleted from Jotform, Inc.'s servers. Under no circumstances do Jotform, Inc. employees have access to data collected on Jotform, Inc.'s servers, except in exceptional cases following an explicit request from the study manager to resolve a problem.

Data security and integrity

LIH takes appropriate security measures, depending on the sensitivity of the data concerned, to protect your data from the risk of unauthorised access, loss, fraudulent use, disclosure, modification and destruction. Your data will be treated as strictly confidential.

Retention periods

LIH will retain the data collected via the application for 15 years following the date of collection.

Your rights

As we are not collecting data that enable us to identify you, your rights are limited. The exercise of such rights would require to identify study participants, which would considerably weaken the security and confidentiality of data collected for our survey.

However, you have the right to lodge a complaint with Luxembourg's National Commission for Data Protection (CNPD) in relation to the processing of your personal data.

For any question or information about how LIH processes your personal data, please contact LIH’s Data Protection Officer by email at dpo@lih.lu or by post at the following address:

LUXEMBOURG INSTITUTE OF HEALTH
Data Protection Office
1A-B, rue Thomas Edison
L-1445 Strassen
LUXEMBOURG

Family history

The next question is about your family health history.
Does anyone in your family (parents, siblings, children) have diabetes?

We are now going to perform some voice recordings. Please accept the request to use your microphone.

Depending on your browser, you may need to select Remember this decision in order to not be asked for permission on every question.
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Welcome!

Monitoring your health thanks to your voice will soon be possible

Why should you take part in Colive Voice?

Information and Consent

What is Colive Voice?

What is a vocal biomarker?

How to identify vocal biomarkers?

How do I participate?

How can I contribute more to medical research?

Categories of data collected

Data controller

Purpose and legal basis for data processing

Data sharing

Data hosting

Data security and integrity

Retention periods

Your rights

Welcome! First, let us check whether you are eligible to participate in Colive Voice or Colive Diabetes.

Welcome to Colive Voice!

Welcome to Colive Diabetes, the Colive Voice sub-study dedicated to diabetes!

My personality: I see myself as someone who...

Current symptoms

Symptoms in the past few weeks

How often have you been bothered by the following over the past 2 weeks?

During the past month, how often have you had trouble sleeping because you...

Symptoms in the past few weeks

Over the last two weeks, how often have you been bothered by the following problems?

Family history

Diseases

Medication

Which of the following diabetes issues are currently a problem for you?

Did the following symptoms occur over the last month?

Please complete all questions by ticking the answer that best describes how troubled you have been during the last week as a result of your nose/eye symptoms.

For each item below, thick the box that best describes you currently.

Which of the following symptoms apply to you at this time?