Organisation Endorsement: EURORDIS Position on Newborn Screening
This form allows organisations to endorse the joint Position Statement, An Urgent Call for EU-level Collaboration on Newborn Screening, published by EURORDIS-Rare Diseases Europe together with organisations and representatives from across the rare disease community: https://www.eurordis.org/publications/position-statement-eu-level-collaboration-on-newborn-screening/. The Position Statement calls for stronger EU-level collaboration on newborn screening to help reduce inequalities between Member States, support earlier diagnosis, and improve health outcomes for children living with rare diseases. By completing this form, your organisation confirms its endorsement of the Position Statement.
Organisation/Institution/Initiative Name
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Country
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Please Select
Austria
Belgium
Bulgaria
Croatia
Cyprus
Czech Republic
Denmark
Estonia
Finland
France
Germany
Greece
Hungary
Ireland
Italy
Latvia
Lithuania
Luxembourg
Malta
Netherlands
Poland
Portugal
Romania
Slovakia
Slovenia
Spain
Sweden
Other (please specify)
Contact Person Full Name
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First Name
Last Name
Contact Person Role/Title
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Contact Email Address
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example@example.com
Does your organisation endorse the EURORDIS joint position statement on EU-level collaboration on newborn screening?
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Yes, we endorse and support the statement.
No
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