• Organisation Endorsement: EURORDIS Position on Newborn Screening

    This form allows organisations to endorse the joint Position Statement, An Urgent Call for EU-level Collaboration on Newborn Screening, published by EURORDIS-Rare Diseases Europe together with organisations and representatives from across the rare disease community: https://www.eurordis.org/publications/position-statement-eu-level-collaboration-on-newborn-screening/. The Position Statement calls for stronger EU-level collaboration on newborn screening to help reduce inequalities between Member States, support earlier diagnosis, and improve health outcomes for children living with rare diseases. By completing this form, your organisation confirms its endorsement of the Position Statement.
  • Does your organisation endorse the EURORDIS joint position statement on EU-level collaboration on newborn screening?*
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