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  • Specialty Skill Set & Interest Survey

    ReNU Syndrome United

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    Thank you for being a part of our RNU4-2 / ReNU Syndrome community! Our mission is to Drive Awareness, Build Community, and Advance Research. Please share any skills or interests that you have in helping, so that we can ReNU hope together!

  • Here is an example of the organizational structure for ReNU Syndrome United that the Board of Directors of RSU (USA) is working towards.

    Please see below for an example of the organizational structure for ReNU Syndrome United that the Board of Directors of RSU (USA) are working towards. As you may be aware, our organization was established in October 2024 and we currently have a Board of Directors, as well as two established committees - the Fundraising & Awareness Committee, and the Global Coordination Committee, which is comprised of leaders of the various ReNU Syndrome associations that have been established in countries around the world. Additionally, we currently work with a robust group of global Scientific Advisors. In the future, we are looking to expand our volunteer committees to add a Patient & Family Support Committee, a Special Projects Committee, and a Communications & Events Committee. As you complete the survey below, if any of these particular areas are of interest to you, please indicate within the survey. Thank you!

    Our organization collaborates with a robust group of global Scientific Advisors, has 1 Board of Directors, and 2 established committees:

    • Fundraising & Awareness Committee
    • Global Coordination Committee - comprised of ReNU Syndrome association leaders in countries around the world

    To expand our capabilities, we're adding 3 more:

    • Patient & Family Support Committee
    • Special Projects Committee
    • Communications & Events Committee

    If any of these interest you, please indicate within the survey. Volunteering doesn’t have to mean a huge time commitment—every small action is a step forward for all of us! Let’s show the world the power of our community.

     

    With hope and gratitude,

    ReNU Syndrome United

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    By submitting this information, I agree to share the provided information with ReNU Syndrome United to advance our mission to spread awareness, build community, and advance research.

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