COMP-LC-2025-01-V1 Provider Survey

Understanding Community Needs for a Long COVID Digital Care Management Platform

Please take a few moments to complete this survey about your experience.
1 - In what capacity do you interact with patients who have long COVID? (check all that apply)

Primary Care ProviderInternal Medicine Specialist (e.g. Cardiology, Pulmonology, Neurology)Long COVID Clinic Provider (i.e. support these patients in a dedicated clinic or as part of your regular clinical role)Rehabilitation Clinician (e.g. Respiratory Therapist, Physical Therapist, Chiropractor, Speech-Language Pathologist)Other (please specify)
Other:
2 - How satisfied are you with the current guidelines and resources used for managing long COVID?

Very satisfiedSatisfiedNeutralDissatisfiedVery dissatisfiedNot sure
Please share any additional comments below:
3 - Which of the following support services or resources would help you better care for your patients? (check all that apply)

Additional support staffAccess to up-to-date training and educational materialsStreamlined referral or care coordination systemsImproved access to diagnostic toolsImproved access to treatment optionsEnhanced communication tools for patient follow-upSupport services to engage patients between clinic visits (e.g. Population health/Pharmacy outreach)Other (please specify)
Other:
4 - How helpful would a tool be that learns from the experiences of many patients and providers to suggest care ideas or support decisions for people with complex or long-term symptoms (like Long COVID)?

Not helpfulA little helpfulSomewhat helpfulVery helpfulExtremely helpful
5 - Which types of insights would be most valuable for you to see on a platform when evaluating treatment options for long COVID?

Insights generated from Patient-Reported Outcomes (PROs) such as treatment efficacy, side effects, and symptom changes based on personal experience.Insights from provider-reported outcomes on treatment efficacy, side effects, and symptom changes based on clinical observations.A combination of both patient- and provider-reported outcomes to give a more complete pictureI’m not sure / no preference
6 - What types of decisions would benefit most from having this kind of patient-reported data over time?(Select all that apply)

Diagnosing or confirming conditionsChoosing or adjusting treatmentsDeciding on referralsMonitoring treatment responseSupporting disability documentation or work accommodationsOther (please specify):
Other:
7 - What concerns, if any, do you have about using data reported by patients (e.g., in apps or surveys)?(Select all that apply)

Incomplete or inconsistent dataInaccurate reporting or misunderstanding of symptomsToo much data to reviewNot sure how reliable it is for medical decisionsNo major concernsOther (please specify)
Other:
8 - What kinds of clinical alerts in a patient-facing app would be most useful to you?(Select up to 3)

Worsening symptomsNew or urgent red flag symptomsMedication side effectsMissed check-ins or appointmentsDecline in function or daily activityPatient stops treatment earlyOther (please specify)
Other:

9 - Please share your thoughts on how beneficial you find the following resource:

Rows	Very Useful	Useful	Neutral	Not Very Useful	Not Useful at all
How helpful are tools like apps, reminders, and coaching for patients in managing their long COVID symptoms?
How helpful do you find remote monitoring tools like wearables, in managing long COVID symptoms?
How helpful would a tool be that shows patient-reported outcomes over time to support your clinical decisions (e.g., treatment planning, medication adjustments)?
How helpful would a tool be that learns from many patients and providers, and gives you suggestions, predictions, or risk alerts to help manage care for people with Long COVID?

For Long COVID Providers Only :

10 - How important are the following motivations for your participation in a long COVID clinic?

Rows	Not Important	Slightly Important	Moderately Important	Very Important	Extremely Important
Improving patient care and outcomes
Collaborating with colleagues and specialists
Access to resources, tools, and clinical guidelines
Personal interest in long COVID care and management
Personal experience with long COVID symptoms or related conditions (e.g. ME/CFS, POTS,
Opportunities for professional developement
Compensation or institutional incentives (e.g., funding, protected time)

11 - How likely are you to continue participating in a long COVIC clinic or dedicated long COVID service as part of your regular clinical care over the next year?

Very UnlikelyUnlikelyLikelyVery LikelyNot SureN/A
12 - Would you be willing to participate in a 20–30 minute follow-up virtual meeting with a member of our research team to further discuss your experiences?*

Yes (Submit email in separate form below)No
Schedule Interview
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Understanding Community Needs for a Long COVID Digital Care Management Platform